Assemblymember Nazarian Secures $3.7 Million for the United States only Parkinson’s Disease Registry in the 2017 - 18 Assembly & Senate Budget Proposal

Wednesday, June 14, 2017

Assemblymember Adrin Nazarian (D-Sherman Oaks)

(Sacramento, CA) Assemblymember Adrin Nazarian (D-Sherman Oaks) secured $3.7 million to fund the only Parkinson’s disease registry in the United States. AB 2248, passed in 2004 established the Parkinson’s disease registry modeled after the world renowned California Cancer Registry. The Parkinson’s disease registry has never been funded.

“Funding a Parkinson’s disease registry will allow scientists a wealth of data to identify patterns in Parkinson’s disease throughout our state, allowing for a better understanding of the causes of this disease,” stated Assemblymember Nazarian. “As the only State with a funded registry, we will give our scientists an unmatched competitive edge for grants and additional Parkinson’s research funding.”  

A pilot program targeting counties: Fresno, Kern, Santa Clara, and Tulare was established with funding and coordination from the Michael J. Fox Foundation, Department of Defense, National Institute of Health, American Parkinson’s Disease Association, and Team Parkinson’s. The pilot program produced a ground breaking study that linked certain pesticides to an outbreak of Parkinson’s disease. The report is entitled Well-Water Consumption and Parkinson’s Disease in Rural California.

By investing State resources in a Parkinson’s disease registry, California hopes to duplicate the success of the cancer registry, which, according to Dr. Dennis Deapen, the Director of Los Angeles County Cancer Surveillance Program: “we have been able to document geographic patterns and.... have seen significant declines in death rates due to cancer registry.” The California Cancer Registry has also has provided better detection methods as well as treatments for cancer patients.